The core activity of AGO Alliance is to create a community for families with affected children, to accelerate and raise awareness of the development of therapeutics for AGO1/2 syndromes. This includes supporting research, organizing community activities and providing information and resources for affected families.
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Products & services
Industry:NGOs & NPOs
Outbound Leads by COHAGA
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Private family support group, connecting with other affected families, a parent-to-parent form, local meetings, and assistance after diagnosis.
Support research and fund treatment pathways
Patient registry, natural history study, disease models, drug discovery, preclinical studies, and preparation of clinical trials for AGO1- and AGO2-associated syndromes.
Awareness and information work
Plain-language, reviewed information on Argonaute syndromes, genetic reports, symptoms, prognosis, treatment options, and resources for families.
Collect donations
Online donations, bank transfers, and cryptocurrency donations to finance awareness, the family network, and research; international giving routes with tax deduction via partners.
Newsletter
Quarterly newsletter with updates on our work, planned events, the patients’ health status, and news from the rare-disease world.
Knowledge
No knowledge articles yet
Once AGO Alliance has claimed this profile, we'll publish editorial articles and case studies here together.