The core activity of ELA Switzerland is to support and promote research and assistance for people with leukodystrophies, a group of rare, genetically determined diseases that destroy the central nervous system. To this end, the association collects donations, organizes solidarity actions and events, provides information and support to those affected and their families, and promotes medical research in this field.
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Support for affected families
Guidance and support for families with people affected by leukodystrophy, including help with practical and emotional issues and relief in everyday life.
Promotion of medical research
Funding and support for research projects on leukodystrophies, clinical and preclinical studies, animal and cell models, as well as scientific congresses.
Awareness and information
Raising awareness among the public and the medical community through events, information, seminars and exchange with specialists.
Run for ELA and defeat the disease
A school campaign for awareness and fundraising, where students count steps, mobilize sponsors and support research as well as families.
Run for ELA at work!
Company campaign with step counting, internal mobilization and a donation per step; including awareness materials and an adaptable daily program.
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