Marfan Stiftung Schweiz

The core activity of the Marfan Stiftung Schweiz is to support and accompany people and families affected by Marfan syndrome or related connective tissue disorders. This includes providing information, counseling, and self-help services to improve the quality of life of those affected. The foundation does not provide direct financial support, but focuses on organizing events, promoting self-help groups, and providing medical information and resources.