Duchenne-Schweiz

The purpose of the association is to promote the collection and dissemination of information on the genetic disease Duchenne muscular dystrophy for those directly affected, families, relatives and interested parties. The association achieves this purpose, among other things, by operating a knowledge portal, evaluating scientific research results, exchanging with specific bodies and conducting its own research. At the same time, a personal support service is also provided. The association is non-profit, politically independent, ideologically neutral and non-profit.