Fondation MaRaVal - maladies rares valais - seltene krankheiten wallis

The foundation's aims are: a) to improve knowledge and recognition of rare diseases; b) to develop the skills of stakeholders; c) to promote the autonomy of patients and their families; d) to strengthen families in their role as caregivers; e) to alleviate the burden that rare diseases place on those affected, particularly the most vulnerable. The foundation offers patients, their families, the professionals who support them, and other audiences various types of services: a) support; b) coordination; c) training; d) awareness-raising; e) expertise. It is primarily active in the canton of Valais and, if necessary, outside the canton; it can carry out any other activity that helps achieve its aims.