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Fondation Progena

Summary

About the company

The core activity of Progena is to support and promote research and awareness for the muscle disease Duchenne Muscular Dystrophy (DMD). The company organizes conferences, maintains a patient registry, and provides support and counseling to families of those affected. It is a non-profit organization focused on promoting the health and well-being of people with DMD.

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Information on Duchenne and Becker muscular dystrophy

Information about Duchenne and Becker muscular dystrophy, disease progression, medical research and therapies for those affected and families.

Swiss patient registry for neuromuscular diseases

Swiss registry for neuromuscular diseases, collection of medical data, support for clinical studies and guidance on treatment and care questions.

Family guide and treatment standards for Duchenne muscular dystrophy

Family guide to international treatment standards, multidisciplinary care, therapy coordination and information for the treatment of Duchenne muscular dystrophy.

Duchenne conference

Conferences for parents, patients, doctors, therapists and other interested parties on Duchenne muscular dystrophy.

Awareness and information events for World Duchenne Day

Events on the World Duchenne Annual Day to raise awareness of Duchenne muscular dystrophy and to provide information for those affected and families.

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Fondation Progena

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Fondation Progena

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