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© 2026 cohaga AG · All Rights Reserved · St. Gallen, Switzerland · Imprint745,937 companies indexed · Last updated: today
DirectoryAssociations & Interest GroupsNGOs & NPOsGiubiascoAssociazione Malattie Genetiche Rare Svizzera Italiana
Associazione Malattie Genetiche Rare Svizzera Italiana Logo
Verified· 3 sourcesTrust Score
Summary

About the company

The company's core activity is to support and care for people with rare genetic diseases and their families. This includes providing information, financial support, organizing leisure activities and vacations, as well as social counseling and assistance. The company acts as an association and provides a platform for those affected to network and receive support.

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4.1/5

Associazione Malattie Genetiche Rare Svizzera Italiana

✓ Offered7
Support and counselling
Individual support and counselling for people with rare diseases and their family members, with social workers; psychological support in collaboration with psychiatrists and psychotherapists.
Financial support
Financial support for people resident in Italian-speaking Switzerland affected by a rare genetic disease, on request and subject to the association’s availability.
Inform and raise awareness
Information meetings, courses and workshops on rare diseases for patients, family members, physicians and healthcare professionals; raising awareness among authorities, the scientific community and citizens.
Discussion and exchange groups
Discussion groups and exchange meetings for patients, family members and young people, usually every 5–6 weeks via videoconference or in person.
Youth group for rare diseases
A discussion group dedicated to young people with rare diseases, led by Angelica Pennucci, with periodic online or in-person meetings.
Holiday week
Holiday week for users of the association, organised annually in various locations in Switzerland and supported by partners and donations.
Swiss Register of Rare Diseases (RSMR)
Participation in the national register for people with a diagnosis or suspicion of a rare disease, to support research, connect with others and improve care.
Trust & reputation

ranQ Trust Score of Associazione Malattie Genetiche Rare Svizzera Italiana: 4.1 out of 5.0

Trust Score4.1/ 5.0

High

x

Data basis 58% · As of October 2026

Without public customer reviews the score stays capped.

Associazione Malattie Genetiche Rare Svizzera Italiana has no value in the Reputation area of the ranQ Trust Score because no data is available. The area carries 42% of the weighting and drops out of the calculation for this profile; it does not lower the score, only the reported data basis.
x
CriterionValueWeight
  • Review quality: No data point — the criterion is taken out of the weighting and does not lower the score.—24%
  • Review volume: No data point — the criterion is taken out of the weighting and does not lower the score.—10%
  • Review recency: No data point — the criterion is taken out of the weighting and does not lower the score.—8%
Associazione Malattie Genetiche Rare Svizzera Italiana scores 80.3 out of 100 points in the Substance area of the ranQ Trust Score. This area carries 28% of the weighting.
x
CriterionValueWeight
  • Establishment: Years since founding or brand launch, logarithmic. The maximum is reached at 15 years.92.512%
  • Company size: The headcount band, researched by ranQ or stated by the company. It is scored in steps rather than by head count, because the data only provides bands.70.07%
Associazione Malattie Genetiche Rare Svizzera Italiana scores 85.0 out of 100 points in the Identity area of the ranQ Trust Score. This area carries 22% of the weighting.
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CriterionValueWeight
  • Verification: Official register entry (commercial register with UID or professional-body record, 55 points), confirmed domain (20 points) and confirmed ranQ profile (up to 25 points, depending on completeness).85.022%
Associazione Malattie Genetiche Rare Svizzera Italiana scores 43.6 out of 100 points in the Visibility area of the ranQ Trust Score. This area carries 8% of the weighting.
x
CriterionValueWeight
  • Website authority: Ahrefs' Domain Rating measures, on a scale of 0 to 100, how strongly a website is linked from other websites. For Swiss SMEs the range up to 40 is typical; the maximum is reached at 35.77.14%
  • Media authority: Quality and number of editorial mentions, weighted by the importance of the source, plus the recency of the latest high-quality mention.10.04%
Qualifications+0.00

Associazione Malattie Genetiche Rare Svizzera Italiana reaches a ranQ Trust Score of 4.1 out of 5.0 — rated «High». No public customer reviews are available for this provider; the rating is based on the remaining criteria. The data basis is 58%, so the score is backed by part of the criteria. As of October 2026.

The Trust Score cannot be bought and is calculated from publicly verifiable data.

Press

Media

May 22, 2022Media
Malattie genetiche rare, ‘La cucina di Manu’ dona 30mila franchi
laregione.ch

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Location

Via Ada Martinoli 1a
6512 Giubiasco

At a glance

Legal form
Association
UID
CHE-488.112.634
Founded
2014 · 12 years
Last commercial register change
July 17, 2026
Employees
11 to 20
Legal form: Graded by liability and disclosure. The weight is kept small: a sole proprietorship is not a dubious company, it is just liable differently.73.06%
  • Branch offices: Branch offices linked in the commercial register. Having none is normal and costs no points.70.03%
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