The association's aims are:
- To inform and raise public awareness about Silver-Russell syndrome and children born Small for Gestational Age (SGA);
- To inform, guide, and advise concerned families, whether they are members of the association or not;
- To promote exchange, information, sharing of experiences, and meetings between affected individuals, their families, and third parties;
- To promote the visibility of the cause through the organization of events, events, and the production of communication materials;
- To federate events and activities whose proceeds are exclusively dedicated to achieving the association's objectives;
- To actively collaborate with other patient or medical associations, particularly with the association Silver Russell PAG France, to stay informed and participate in events, conferences, and medical meetings;
- To surround itself with a scientific council to optimize the association's actions and contribute to the improvement of patient care;
- To encourage medical research on genetic diseases and their treatments;
- To promote the continuing education of doctors through the dissemination of information materials, the development of training programs, and collaboration with educational institutions;
- To act with the competent authorities to defend the rights of people with disabilities or affected by rare diseases.
Outbound Leads by COHAGA